Showing posts with label Advocacy. Show all posts
Showing posts with label Advocacy. Show all posts

Tuesday, June 23, 2020

Living Big Living Full Living Authenic: Meet Lamondre Pough

When I met Lamondre Pough I was reminded once again why I started a View from My Window 10 years ago. He is the definition of "when life gives you lemons, make lemonade."  

He had the odds stacked against him from the moment he entered into the world. He also had an advocate, his mom Betty. Several times throughout the interview, Lamondre mentioned how Betty was the reason behind his success, his determination and his mindset. His mom has always had her own mind and walked to the the beat of her own drum. 

She required Lamondre to have a thought process and to take responsibility for his own life. He said that there were always "real world" conversations. One day she said: "Son, No one will treat you the way you treat yourself." This was one of the many things his mom told him that helped mold and shape him into who he is today. 

I particularly appreciated the fact that his mom, his sister and himself had deep meaningful talks because in today's world, there isn't enough of that. Having deep conversations means deep connections which means stronger families and stronger emotional well-being, which leads to a happier individual. Lamondre has used the stability in his childhood, not only to help himself in navigating his life and the direction he wanted it to go, but he has a incredible passion for helping others tap into their potential, even if it has been unexplored for some time. 

In telling stories like this one, it really helps you to step back and reflect, showing personal interest in someone, asking, "How did you get here"? and really listening. Listening with a view to understanding and applying. Everyone you come in contact with teaches you something. Every experience, every interaction shapes the person you are, and eventually the person you want to become. Lamondre Pough didn't let the noise of those who thought it was impossible for him to live the life he wanted to ever cloud his vision and make him lose sight of his ultimate goal: LIVING BIG, LIVING FULL, LIVING AUTHENTIC!!!!!!

Listen to Lamondre's interview here:  www.arcind.org/podcasts/a-view-with-lamondre-pough/

Michelle  Fischer is the host of  A View from My Window, a podcast produced, by The Arc of Indiana

Thursday, August 1, 2019

A look back and beyond: Kim Dodson celebrates 20 years with The Arc of Indiana!

Have you ever watched a TV commercial, whether it's for an insurance company, a bank or a new snack food and the commercial has happy smiling people and some fancy slogan, yet you think, "Wait, I don't remember that being my experience!" I can say with absolute certainty you will NEVER find that to be the case at The Arc of Indiana! I work with a team that is committed to serve others to the best of their ability and sticking with those they serve until the desired goal is accomplished! The woman in the drivers' seat heading up the daily operations is Kim Dodson. In 2018, Kim celebrated her 20 year work anniversary and to say that she's committed to doing her job well, is an understatement! She was hired and mentored by retired executive director John Dickerson in 1998, with no background in the disability field, but that didn't stop John from teaching, training and cultivating Kim's potential. She grew so much under John's watchful guidance, that 3 years ago when John retired, Kim became executive director. When I interviewed Kim about her years of service, I could tell just how deeply the relationship with John had affected her. She is such a genuine person, everything about Kim sparkles, shines and beams! She wants to leave you better than when you first walked in the door. That's why I came to the Arc of Indiana almost 9 years ago. John hired me, saw and cultivated my potential for growth, and now Kim carries that on, not only for me, but for all of us! We all feel loved, valued and appreciated! Our work atmosphere is "We work better together" and what we each bring to the table is embraced and refined, so we all continue to work as one great team!!  Happy 20 year Anniversary Kim! WE LOVE YOU!!!

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

Read more about what drew Kim to work in the disability field here: http://www.townepost.com/indiana/broad-ripple/kim-dodson-a-hero-for-the-special-needs-community/

Monday, April 16, 2018

Behind The Mic Book Review UGLY by Robert Hoge

I absolutely LOVE when friends give me book reviews!  I logged onto my facebook page one morning and my facebook friend, Rita Shutes, whom I also know personally, had posted a picture of her daughter Olivia with this book standing outside a nursing home where she reads to the residents.  Rita has really instilled in her children the need to give back and make people's day a little brighter.  I have been a recipient of many of these gifts to make people's days' brighter, when I worked as a receptionist at Olivia's daycare!  When it came to this book, it also brightened my day!  UGLY by Robert Hoge is one marvelous book!!  As I got to know Robert through this book, I was moved by his courage and his fortitude to live life to the fullest, despite how different his appearance is from those around him!  He was able, at a young age, to go through a life changing surgery, yet understanding that the outcome would mean an easier way of living.  Unbelievably brave!  What was also brave to put in this book was the reaction of his mom after he was born.  She told Robert later that the reason for her reaction was pride.  She was worried about what people would think about the way he looked.  After working things out inside herself, Robert's mom's love for him grew strong and fierce!  What I really appreciated about this book is that it helps you to look outside your own comfort zone, coming to realize that you don't have to always go along with what society deems as "approved".  We are individuals, made up of different feelings, reactions, desires, dreams and abilities and we are not robots.  All human beings should be treated with dignity and respect!!  Robert gives this magnificent advice:  "If you're different from other kids, don't worry about the jigsaw puzzle.  Don't judge yourself by everyone else's seemingly beautiful picture.  And don't worry if your final picture doesn't seem clear or if the edges around your story don't seem sharp.  The solution is simple: Be unafraid of living.  The puzzle pieces will take care of themselves"

The sentences above are just one of the many golden nuggets you can keep in your "positive thinking" memory bank when you need it!!

Robert: Thank you so much for telling your story through this book!  It reinforces the adage that you can NEVER judge a book by its cover, but you can learn life changing lessons from it!

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

Pick up Robert's book here: www.amazon.com/Ugly-Robert-Hoge/dp/0425287777/ref=sr_1_1?ie=UTF8&qid=1523929546&sr=8-1&keywords=ugly+by+robert+hoge

Wednesday, October 25, 2017

The Celiac Disease Monster is in attack mode.....TURN and RUNNNNN!!!

FACT: 1 out of every 133 Americans has celiac disease, nearly 1% of the US population.  83% of the 3 million Americans living with celiac disease remain undiagnosed or misdiagnosed.

Hello, my name is Michelle Fischer and I am among those who have this disease.  I was a lover of all things GLUTEN before I was diagnosed! Bread, cookies, pasta, pizza...you name it, I ate it and enjoyed every last morsel!  Then suddenly after so many happy delicious meals, everything changed!  I couldn't eat without having to make a B-line to the bathroom. I was extremely tired with dark circles under my eyes and I felt nauseous ALL the time!  Was there a monster inside me?  I honestly thought I had some ultra fatal condition!  I'm always really good at building up the worst case scenarios in my head. When it comes to anything medical, I try to be a good patient, but the problem is I don't like needles or painful procedures but I was forced to face needles and blood work head on because my body was fighting a battle against itself and I was smack dab in the middle of dealing with severe repercussions!  I was COVERED in a rash from head to toe that was the itchiest rash...seriously I had never itched that much in my life!  After the rash appeared and the itching was consuming my whole life, my mom and I knew we needed to find out what was going on, because something was terribly wrong!  Two doctors, an awesome internist and a magnificent allergist told me the news I dreaded, yet relieved it was a disease that we would be able to manage. Confession: I cried the first time I couldn't just go in somewhere and order whatever I wanted.  As time has gone by though, having celiac disease has really been an empowering sort of journey for me.  I have become an expert label reader, researcher and food detective, which has resulted in being a healthier me.  Now, there have been a few times where I have slipped unknowingly, because sometimes ingredients aren't listed properly and I didn't look close enough, but it doesn't happen often and for that I'm grateful.  Having celiac disease has also brought self-care to the forefront.  It pays to care about what goes in your body and know what things are affecting you.  I deserve to be the best I can be and you do too!  Making these changes and making self-care a priority...makes you the best YOU!  That's the best gift you can give yourself and others.  Life is meant to be lived to the full, with nothing holding you back or standing in your way!

If you, or someone you know is suspecting a gluten allergy, please don't wait to get tested!  The great people at beyondceliac.org have wonderful resources and all things celiac disease! I interviewed Alice Bast on the podcast a couple of years ago! Here's the link to that interview! www.arcind.org/podcasts/a-view-into-celiac-disease-with-alice-bast-national-foundation-for-celiac-awareness/

Here's a celiac symptom questionnaire as well if you suspect celiac disease: www.beyondceliac.org/celiac-disease/symptoms-checklist/

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

Monday, October 23, 2017

Behind The Mic Book Review: Keeping My Balance A Memoir of Disability and Determination by Stephanie Torreno

Google is a girls' best friend when it comes to finding memoirs on disability, so a journalist such as myself, can wet your appetite to check these books out!  Google did not disappoint this journalist either!  Keeping My Balance A Memoir of Disability and Determination by Stephanie Torreno, is a book that shows just because you have a disability or special need, doesn't mean you can't accomplish your goals or dreams. The key is to explore and consistently push yourself out of your comfort zone, to see how you handle the ups and downs of life that everyone experiences.  Stephanie is incredibly candid in expressing her hurdles, struggles and humor.  I couldn't put this book down!  She had huge hurdles to overcome.  Her speech was difficult to understand and she needed note takers in school and throughout college.  Transportation needs were addressed, sometimes her mom would take her places, sometimes her Nana, then MetroLift....each time she talks about MetroLift though, all I could do was shake my head!  They were always late!!  It's never comfortable to be late, even if you're fashionably late!  Home health care nurses helped with prepping meals, but it was hard to find and keep good help.  The next couple of challenges Stephanie faced were some of the most heartbreaking.  The tragic losses of her Dad to suicide and her Nana to cancer.  Depression and anxiety became her new normal on top of the challenges of cerebral palsy.  She had to come to the realization that no one caused her dad's suicide, so she didn't have to feel responsible.  I really resonated with how she felt, wondering if depression would ever loosen it's grip so that I would feel like myself again, too.  The most wonderful transformation, though, was how through all the challenges, even the ones I haven't covered in this post, Stephanie never stopped moving forward, even when the obstacles seemed impossible!  It was all about mindset when it came to accomplishing the task of college, family life and loss.  This book underscores the fact that no one is "special" or immune to what life can throw at you.  The true success of anyone is all about navigation of the hills, valleys and boulders. Stephanie Torreno NEVER gave up and never gave in.  She kept her balance always with grace and determination...The moral of this story: "You never know how strong you are, until being strong is your only choice"----Bob Marley

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

Thursday, October 19, 2017

Behind the Mic Book Review: a special education by Dana Buchman

 "What was going on inside me - what still sometimes goes on - was a frightening identification with my daughter and a feeling of being revealed as less than perfect.  On the outside, I project a very together exterior; hard-working fashion designer of a popular label, happy wife and mother of two, with any unpleasant feelings neatly tucked in.  But on the inside, I am messy.  I am insecure, incomplete.  I always feel I'm not the best I can be, not an "A." Underneath the glam exterior, I'm vulnerable, flawed.. I have always been afraid of these very human emotions, and I've always done everything in my power to block them out" ----Dana Buchman

Well, this pretty much ends the writing of this book review, doesn't it?  Period. Ok, blog finished!  Ok, ok.. really, there is just a couple more paragraphs to this review, I promise!  I couldn't help but totally relate to the sentences above when thinking about my challenges, but the cool thing about having someone like Dana Buchman, one of the most recognized designers in women's clothing write a book and share her story, is that it shows she is made up of the exact same things we all are..flesh and blood.  That flesh and blood makes us all human.  No matter your situation in life, famous or not, able-bodied or not, married or single, black or white..the list could go on and on, we all have stories of triumph over difficult hurdles and obstacles.  Dana writes about discovering herself, which helped her in understanding that showing you're not perfect in every aspect is what makes you more relatable, and in the end, more comfortable with yourself.  You can't give to others from an empty cup.  In my own personal circumstances in coming to terms with cerebral palsy, I was ALL about denial and burying my head in the sand. Just like Charlotte though, no matter how hard I tried, it was there like a glaring eye sore..in order to cope, I had to face my challenges head on..Me, Me and only ME! That's the way Dana had to approach the roller coaster of challenges that would characterize her daughter Charlottes' journey with learning disabilities.  Fear, anger, confusion, deep sadness and pain.  This was not how Dana usually lived life... she was very in control, the driver of her own success.  Just when it seems that there is a boulder that wants to shatter her life in pieces, Charlotte slowly but surely proves that learning differences will not define her or those around her, especially the love and bond of her family!  This book was published in 2006, but the moral of the story is the same: Whatever your destination, there's a million beautiful, ever-changing ways to get us there!

Michelle Fischer is host of  A View from My Window, a podcast produced by The Arc of Indiana



Monday, October 9, 2017

Looking through my writing archives...A piece written for the HandicapThis Team!

This is a #Throwback post! I wrote this piece a couple of years ago for the HandicapThis Team! Hope you enjoy!

Emotions are what connect us.  We can speak to each other through emotions.  When someone cries, they need comfort.  When someone is angry or upset, they need a listening ear.  When someone is so happy they can’t hold it in, your heart bursts out in happiness with them!  What helps motivate you to connect with others through your emotions?  Understanding and fellow feeling.  These two qualities help you to put yourself in another person’s shoes.  You remember that, at certain times in your life you have also felt the weight of heavy emotions - the ones where you feel like you could break and shatter and not be able to go on...  You have also felt the feel good emotions, happiness and contentment, feeling so good that nothing will stop you!   You may say to yourself, “Negative thoughts, what negative thoughts? I’m ecstatic” ...as you bask in your happiness.  As you go through these emotions in your lifetime, who is there for you?  Whoever the person is, you no doubt feel so much better after you talk about how you feel.  Whether it’s pouring out your heart or getting set to accomplish something you have always dreamed of, someone you love, respect and care for is and was there, for...YOU.

Those who love you, may have taken the time to share insights into what helps them get through certain situations without letting their emotions take over and keeping a level head.  Then you may decide to pay it forward and share it with someone else.  For example, let’s say you try to give encouragement and positive help to someone and you walk away feeling like you helped them.  However, the next time you see them, they seem guarded and closed.  Within yourself, you may feel like the help or advice you gave, didn’t help at all.  Here’s something my mom has always said to me, “People can only give you what they can give you on that day”.   Everyone, disabled or not, deals with stresses, emotions and disappointments in different ways.  These things weigh on people, and there are days when it would just be easier to stay in bed!

A good thing to remember, though, is that the time you take to be there for someone will always be remembered.  When something is on someone’s shoulders, it sometimes takes time for the advice to sink in.  At the time, they may not be able to see how your advice will help them, but in the long run, it can have an impact on that person for the good - helping them to keep moving forward!  That’s such a wonderful gift you can give to another person - using what’s in your power to help.  A kind word or a gentle hug, can help that person to recharge and become resilient again!  

I often talk about how people with disabilities should be included in groups with those without disabilities so that each can benefit from the other.  People with disabilities are often thought of as needing something.  However, we can give something, as well.  Since there is more happiness in giving, I propose that we start something new.  All those who have disabilities (I’m included in this group:), can make an effort to give of themselves everyday.  Talk to someone without a disability.  Talk to someone with a disability!  Say hello and put on a warm smile. If you are able to have a longer conversation, you might be surprised by what you find out about them.  You may find out that you have more in common than you first thought and you might just be the person that makes their day a bit brighter.  Practice makes perfect and the more you practice relating to people, the more you can give of yourself to them.  People will observe the way you view the challenges and obstacles that come up in your daily routine, and how you handle them.  As you work on your perspective and your positive emotions, you will become a person who can be there for others.  As you give back for all the times others have given to you....the impact will be lasting and priceless!

Emotions are powerful for the good or bad, building up or shattering to pieces.  Ask yourself: What part do I want to play in how far Disability Awareness rolls on?  What kind of ripple effect do I want to make for those around me?  Emotions are what connect us.  Putting our heart into our emotions - the motivation behind how we use our emotions - will help keep us together!

Michelle Fischer is host of A View from My Window a podcast podcast produced by The Arc of Indiana www.arcind.org/podcasts/





Thursday, July 28, 2016

Behind the Mic Book Review : Bloom: finding beauty in the unexpected by Kelle Hampton

Bloom: finding beauty in the unexpected, by Kelle Hampton is a book that is candid, honest, raw and yet, a refreshing look into the diagnosis of a life-changing disability.  Kelle's second child, Nella, was born with Down syndrome. Kelle's heart sank the moment she saw her baby girl.  Altho she felt like she was alone, she never really was.  Kelle's husband, Brett, along with countless girlfriends, held Kelle up when everything seemed to be shattering around her.  They cheered her on as she bravely faced the yet unknown challenges that she would have to come up to the plate and conquer.  While she didn't hold back the ravages of her emotions and the pain that shook her insides to the core, you can clearly see, early on, the kind of person Kelle really is... She was able to develop deep relationships that sustained her and helped her to heal, while she changed her perspective.  She began to realize that the pain of her little girl's diagnosis seemed to blur her vision to the fact that Nella was a healthy, beautiful baby!  When the challenges presented themselves, she wouldn't be alone in surmounting them.  Dr. Foley was on the front line of support and would lovingly remind her that little Nella was already making advancement.  She passed her hearing test, her jaudice numbers were disappearing, and her heart test was fine, which not always, unfortunately, can be said of those with Down syndrome.  As you go along on the journey with Kelle, you begin to see that, despite the earth shattering change that occurred, she knew she couldn't stay down in the mire of negativity, or under the control of her "sadness demons" as she called them.  She had to begin to "flip the switch in her head" as her sister Carin called it.  She also asked her to ''discard the old glasses and put on the new ones, because, life is how you look at it."  There are countless illustrative word pictures in this book that I am going to keep in my "positive thinking memory recall list" (Yes, I made  that up....aren't you amazed?? :) )  In writing this book, Kelle, has given such a gift to all who live with a disability and their parents and caregivers.  Kelle was inspired by a statement she read while pregnant with Nella... It said:"Living a life of comfort, does nothing to help us grow, and hard times shape us into interesting, developed characters." Getting out of our comfort zone, helps us to "Bloom" finding beauty in the unexpected and "waking up to live and love fully!"

Kelle, Brett, Austyn, Brandyn, Lainey and Nella-

Thank you from the bottom of my heart for sharing your journey in this book! You all have shown that to Bloom means to embrace and accept Nella for who she is and help others to do that, too. Awareness of that kind has a ripple effect, and this book and your sharing it, has done that so beautifully! Many hugs to all of you as your story continues to Bloom!  

Want to read Bloom for yourself?? Order it here: www.amazon.com/Bloom-Finding-Beauty-Unexpected-Memoir/dp/0062045032?ie=UTF8&hvadid=3488214665&hvbmt=be&hvdev=c&hvqmt=e&ref=pd_sl_4xk7zhgsyl_e&tag=mh0b-20

Michelle Fischer is host of  A View from My Window, a podcast produced by The Arc of Indiana

Tuesday, February 9, 2016

Sprout: Opening up the world of Acting and Traveling to the disabilitycommunity

I've always loved the nature shows on TV where the host gives you a guided tour into the sites and sounds of another country, city or culture.  I get so excited, almost giddy, to tell the truth.  I can't wait to breathe in the new surroundings as the camera angles just draw you in.  The way those shows are produced gives you the experience of a lifetime without leaving your living room!  I've always been a lover of stage shows and musicals.  In fact, you will eventually hear me say that I want to be on the stage.  Both art forms allow you to transport yourself to another place and time.  I've had the pleasure of interviewing Executive Director of Sprout, Anthony Di Salvo, and was delighted to find that he adores what he does and the impact that he and his staff have on the lives of the people they serve!!  How do they do this, you ask?  Sprout is a non-profit organization that is dedicated to helping people with developmental disabilities grow through challenging, creative and fun experiences that enhance socialization, self-confidence and inclusion.  Creative fun experiences and inclusion??  You had me at hello!  Their travel program offers opportunities to it's participants, in the company of their peers, with the support and supervision of Sprout Leaders.  Some of the trip options include Lake George, Cape Cod, Orlando and Washington D.C., to name a few.  Over the years, international travel to places like Mexico, Italy, France, Spain and Germany have been offered, too.  And guess what??  Not only does Sprout have a travel program, but they also have film programs where participants are taught everything there is to know about filmmaking and acting!  Something else I love is that Sprout is in New York City.  I ADORE New York City!  The MECCA of artistic expression, especially on the stage.  Really there is not enough space on this virtual paper to tell you all about this fabulous organization... You MUST find out more for yourself!  Here's the website.. http://gosprout.org/
Anthony raising Disability Awareness :)
Here's where the showing of the films happen!
Love that Marquee!

If you are someone who is looking to travel and get out of your comfort zone and experience different cultures and meet new people.. Well, Sprout is for YOU!!  Oh, and when you meet Anthony, tell him Michelle sent ya..and thank him for what he has done for the disability community.  It's truly fantastic!

Safe travels on seeing the world and I hope you continue to get many standing ovations for your outstanding performances.....                     GO SPROUT!! :)

Hear Anthony talk about all things Sprout, Here:  http://www.arcind.org/view-into-sprout/

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana


Friday, November 20, 2015

Organization Profile: IPAS

IPAS, or the Indiana Protection and Advocacy Services, was recently featured on "AView from My Window".  I love profiling "new" (to me) organizations who work hard to give people with disabilities a life that is full and meaningful.  IPAS simply wants everyone to be treated the same, which means having the same human, legal and civil rights as everyone else.

The team at IPAS, Executive Director Dawn Adams and Director of Communications Jessica Trimble, plus the dedicated interns on staff are very dedicated to their mission and responsibility of providing the needed support to the disability community in navigating the legal and human rights system, which can be very lengthy and confusing.  What's impressive about Jessica and Dawn is their motivation in helping the folks they serve.  They seek knowledge from other organizations like The Arc of Indiana and the imput from others, including myself, regarding what protection and advocacy mean to us.  The concept of advocacy wasn't even something I could have wrapped my head around, until I started my job at The Arc of Indiana, and saw how much it was promoted and encouraged.  The more confidence I 've gained in coping with my disability, the more appealing advocacy has become to me.  I found that I could implement advocacy in different ways and in different areas of my life.  Advocacy is a gift that is to be shared, so that not only you can live the life that you want, but more importantly so that others can live the life they want and deserve!  

If you or someone you know would benefit from the services IPAS offers,  feel free to contact Jessica Trimble at IPAS  phone: (317).719.3944
                            (317).722.5564 (fax)
                         Email: jtrimble@IPAS.IN.gov

Michelle Fischer is host of A View from My Window, a podcast produced, by The Arc of Indiana www.arcind.org/AViewfromMyWindow

Listen to Dawn and Jessica talk about what IPAS offers in our interview here:  http://www.arcind.org/a-view-into-ipas/