Showing posts with label Cerebral Palsy Awareness. Show all posts
Showing posts with label Cerebral Palsy Awareness. Show all posts

Monday, March 5, 2018

Zach Anner: Showing others that whatever life throws at you, make lemonade and show life who's boss!




 
To say I was just KIND of excited to interview Zach Anner at this year's Arc of Indiana Annual Conference would not even come close to adequately describing my feelings. Zach won Oprah's OWN tv show reality competition in 2011.  There were so many things I wanted to cover, but there was so little time. Let's face it, nobody has time for an overzealous "fan girl" anchor!  There were so many things that I respected him for, that I could not fully express because I didn't want him to feel uncomfortable or make it seem like I had an agenda or make it seem like the only reason that I was interviewing him was because he's a celebrity!  In this blog, as a thank you to him, I would like to tell you why I related to him in many ways.  It all started back in 2005, long before there were competition shows and a guy named Zach Anner.  I had graduated high school and really had no specific plans for myself and I was angry and depressed for several years after that.  I stayed stagnant for years...and then one day my vision cleared, and I thought, "being this depressed and down is not getting you anywhere."  Enter 2011, the OWN reality show and a guy from Texas who seemed so sure of himself... I also knew, from going through my own challenges and struggles, that Zach, who was so confident, poised, funny, brilliantly talented, and showing all his imperfections on NATIONAL TV in front of millions and in front of the most powerful woman in TV history, didn't just magically happen.  His being picked for the show, being a contestant in the competition, and winning didn't just fall in his lap. He worked for every last bit of the success he acquired.  In fact, his having cerebral palsy was giving him the opportunities that he had dreamed of.  Zach had the mindset that "these are the cards I've been dealt, I'm going to take this hand and beat the house with it!"  I saw that I could view my cerebral palsy that way too...and when I started to put my challenges and obstacles in a positive light, things went from looking bleak to opportunity galore!  Because of this mindset, his career has skyrocketed!  He has been a writer/guest star of Speechless, a Youtube star, an author, and there is no telling what else is in the wings for Zach!  Now that I have met him, it gives me even more motivation to redefine what it means to have cerebral palsy...take it by the reigns and NEVER look back!  Back then and now, he shows that it's okay to have flaws and imperfections.  You get through them, everyone does, and you won't die.  You may have a few scars, bumps and bruises, but nothing that you can't rise up from and THRIVE AND SUCCEED!  Now, it's time for me to confess something, I don't think I brought the best of myself to this interview.  In a attempt not to be giddy, I held back in being my usual peppy self and just letting the interview take on my usual conversational style.  I got in my head too much, I think, and if I would have told him some of the things that I wrote here, I think a little bit more of a connection would have been made so that the interview could have flowed a little more.  I regret that part of it, but honestly I had the best time meeting Zach, hearing his advice and his perspective on his life, challenges and success.  He came with his writing partner, Gillian Grassie, who is rockin' success too, being a singer/songwriter and harpist!  I really wish we had more time to talk because these two people are helping each other be the best they can be, and it has had a major pay off!  Love that!  Maybe someday we will all be together again and maybe we will just have a round of strawberry milkshakes! (that's a line he used in a Soul Pancake video where he interviews his grandpa). With all my thanks to Zach and Gillian for coming to the Arc of Indiana Conference and sharing with us your time and talent!  You both are AWESOME SAUCE!!

Take a look and listen to Gillian Grassie: www.youtube.com/watch?v=OK04TKFfWek

Hear my interview with Zach here: www.arcind.org/podcasts/a-view-with-zach-anner

Michelle Fischer is host of A View from My Window a podcast produced by The Arc of Indiana

Monday, December 11, 2017

Behind the Mic Book Review: Someone Like Me By John W. Quinn

I met John Quinn seven years ago. He was commenting on one of Zach Anner's Facebook statuses. Zach Anner won the Oprah's Own show competition, remember? I was in my "interview search mode" trying to book interviews for my podcast. When I get in that "search mode" I can come up with pretty great stuff! I started looking through the comment feed on Zach's status, which I very rarely do, but I when I found John's comments on the feed, they weren't  the type of comments you usually see on public figure statuses. His remarks were dignified, respectful, and very commending of Zach's accomplishment on winning his own show. I noticed after that he made a short comment on his own story. I don't know what the full comment said, because my mind just focused in on the words: "disability" "Navy" and "hid". After seeing those words I was intrigued, but, I ended up going out of the comment feed and forgetting about it until a few hours later. "John is the perfect interview for the podcast, Michelle, c'mon, now, jump on it!" So I invited him to connect on Facebook, bought his book, asked for an interview and the rest is history! Really, John's story is one for the history books for sure. Speaking of books, I couldn't put his down! I read the book in a week! John went into the Navy and retired after twenty years, as a Senior Chief petty officer, which is the eighth of nine enlisted ranks in the U.S. Navy. No one knew until shortly after he wrote "Someone Like Me" that he even had cerebral palsy. That was astounding to me! The foundation that was laid to never let the label "cerebral palsy"  stop or hinder him, was set by his parents. In fact, it was his dad that told the doctors:  I don't want to see the words "cerebral palsy" or "handicapped" listed anywhere in his medical record. If you doctors label him with that now, it will follow him for the rest of his life, and I won't have that."  John comments further on his parents view of his condition:  My parents downplayed the issue of cerebral palsy to ensure that I lived as normal a life as possible  and I was never treated as someone with a handicap by my four brothers and three sisters. It was just the way I wanted it."  John never let his challenges follow him or get him down, even when the tough times reared their ugly head. Through loss, heartbreak, and the rigors of Navy life - screaming commanders, marching in frigid temperatures, a bout of acute cellulitis, losing his parents, his mom to cancer and his dad to a heart attack. His brother Steven took his life by suicide. The heartbreak of losing someone he thought would be the love of his life.  Not one ounce of all the challenges that life has thrown at him, has thrown him off his beat. Through each hurdle he jumped over, he came out stronger and even more determined.  I'm purposefully restraining myself from blogging about the whole entire book. It's a book review which is meant to just whet your appetite, but this book is a definite MUST READ! You will laugh, cry, cheer and most of all, be given hope that the possibilities are endless once you realize never to put yourself in a box, always being ready to push the envelope. As John says: "You want an absolute?  Here are two: You are never alone. There is always hope."  For Someone Like ME!

Thank you John for sharing your story on my podcast so many years ago! And thank you for allowing me to tell your story I appreciated the opportunity! And thank you for always bringing your story to everyone, everywhere! I'm glad I could be a small part of spreading the Awareness and Hope that's behind your story! -----Michelle

Hear John's interview I did with him 5 years ago on his story and book here: https://www.arcind.org/podcasts/a-view-with-john-quinn-author-of-someone-like-me/

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

You can also purchase John's book on Amazon!

Monday, October 23, 2017

Behind The Mic Book Review: Keeping My Balance A Memoir of Disability and Determination by Stephanie Torreno

Google is a girls' best friend when it comes to finding memoirs on disability, so a journalist such as myself, can wet your appetite to check these books out!  Google did not disappoint this journalist either!  Keeping My Balance A Memoir of Disability and Determination by Stephanie Torreno, is a book that shows just because you have a disability or special need, doesn't mean you can't accomplish your goals or dreams. The key is to explore and consistently push yourself out of your comfort zone, to see how you handle the ups and downs of life that everyone experiences.  Stephanie is incredibly candid in expressing her hurdles, struggles and humor.  I couldn't put this book down!  She had huge hurdles to overcome.  Her speech was difficult to understand and she needed note takers in school and throughout college.  Transportation needs were addressed, sometimes her mom would take her places, sometimes her Nana, then MetroLift....each time she talks about MetroLift though, all I could do was shake my head!  They were always late!!  It's never comfortable to be late, even if you're fashionably late!  Home health care nurses helped with prepping meals, but it was hard to find and keep good help.  The next couple of challenges Stephanie faced were some of the most heartbreaking.  The tragic losses of her Dad to suicide and her Nana to cancer.  Depression and anxiety became her new normal on top of the challenges of cerebral palsy.  She had to come to the realization that no one caused her dad's suicide, so she didn't have to feel responsible.  I really resonated with how she felt, wondering if depression would ever loosen it's grip so that I would feel like myself again, too.  The most wonderful transformation, though, was how through all the challenges, even the ones I haven't covered in this post, Stephanie never stopped moving forward, even when the obstacles seemed impossible!  It was all about mindset when it came to accomplishing the task of college, family life and loss.  This book underscores the fact that no one is "special" or immune to what life can throw at you.  The true success of anyone is all about navigation of the hills, valleys and boulders. Stephanie Torreno NEVER gave up and never gave in.  She kept her balance always with grace and determination...The moral of this story: "You never know how strong you are, until being strong is your only choice"----Bob Marley

Michelle Fischer is host of A View from My Window, a podcast produced by The Arc of Indiana

Monday, October 9, 2017

Looking through my writing archives...A piece written for the HandicapThis Team!

This is a #Throwback post! I wrote this piece a couple of years ago for the HandicapThis Team! Hope you enjoy!

Emotions are what connect us.  We can speak to each other through emotions.  When someone cries, they need comfort.  When someone is angry or upset, they need a listening ear.  When someone is so happy they can’t hold it in, your heart bursts out in happiness with them!  What helps motivate you to connect with others through your emotions?  Understanding and fellow feeling.  These two qualities help you to put yourself in another person’s shoes.  You remember that, at certain times in your life you have also felt the weight of heavy emotions - the ones where you feel like you could break and shatter and not be able to go on...  You have also felt the feel good emotions, happiness and contentment, feeling so good that nothing will stop you!   You may say to yourself, “Negative thoughts, what negative thoughts? I’m ecstatic” ...as you bask in your happiness.  As you go through these emotions in your lifetime, who is there for you?  Whoever the person is, you no doubt feel so much better after you talk about how you feel.  Whether it’s pouring out your heart or getting set to accomplish something you have always dreamed of, someone you love, respect and care for is and was there, for...YOU.

Those who love you, may have taken the time to share insights into what helps them get through certain situations without letting their emotions take over and keeping a level head.  Then you may decide to pay it forward and share it with someone else.  For example, let’s say you try to give encouragement and positive help to someone and you walk away feeling like you helped them.  However, the next time you see them, they seem guarded and closed.  Within yourself, you may feel like the help or advice you gave, didn’t help at all.  Here’s something my mom has always said to me, “People can only give you what they can give you on that day”.   Everyone, disabled or not, deals with stresses, emotions and disappointments in different ways.  These things weigh on people, and there are days when it would just be easier to stay in bed!

A good thing to remember, though, is that the time you take to be there for someone will always be remembered.  When something is on someone’s shoulders, it sometimes takes time for the advice to sink in.  At the time, they may not be able to see how your advice will help them, but in the long run, it can have an impact on that person for the good - helping them to keep moving forward!  That’s such a wonderful gift you can give to another person - using what’s in your power to help.  A kind word or a gentle hug, can help that person to recharge and become resilient again!  

I often talk about how people with disabilities should be included in groups with those without disabilities so that each can benefit from the other.  People with disabilities are often thought of as needing something.  However, we can give something, as well.  Since there is more happiness in giving, I propose that we start something new.  All those who have disabilities (I’m included in this group:), can make an effort to give of themselves everyday.  Talk to someone without a disability.  Talk to someone with a disability!  Say hello and put on a warm smile. If you are able to have a longer conversation, you might be surprised by what you find out about them.  You may find out that you have more in common than you first thought and you might just be the person that makes their day a bit brighter.  Practice makes perfect and the more you practice relating to people, the more you can give of yourself to them.  People will observe the way you view the challenges and obstacles that come up in your daily routine, and how you handle them.  As you work on your perspective and your positive emotions, you will become a person who can be there for others.  As you give back for all the times others have given to you....the impact will be lasting and priceless!

Emotions are powerful for the good or bad, building up or shattering to pieces.  Ask yourself: What part do I want to play in how far Disability Awareness rolls on?  What kind of ripple effect do I want to make for those around me?  Emotions are what connect us.  Putting our heart into our emotions - the motivation behind how we use our emotions - will help keep us together!

Michelle Fischer is host of A View from My Window a podcast podcast produced by The Arc of Indiana www.arcind.org/podcasts/





Monday, November 7, 2016

They even promote Cerebral Palsy Awareness in Australia!




Robyn Cummins, World CP Day Manager- Australia 
When your child becomes diagnosed with a disability, it can feel as if your whole world is crumbling.  The challenge that most parents face is rebuilding and re-envisioning what life will now look like for their child and the entire family.  I recently interviewed Robyn Cummins, World Cerebral Palsy Manager, in Australia.  I loved this interview so much because it really showed that Disability Awareness, especially Cerebral Palsy Awareness is a world wide effort!

 When I started receiving World Cerebral Palsy Day emails several years ago, those emails really underscored the saying that "a picture is worth a thousand words".  Within these emails, guest bloggers write about their experiences with having CP and having enough determination to show others that they can work within the confines of their situations. This means there are certain things that are part of the disability that are not changeable, but there are many variables that ARE in your power to change.
For more information on the World Cerebral Palsy Day Campaign:
www.worldcpday.org/our campaign
 I was also very touched the World CP day team allowed me to tshare my story! They did a great job! Read my story here: https://worldcpday.org/our-campaign/contribution/michelle-fischer/  Here is a little bit more about Robyn Cummins, World CP Day Manager in Australia:

Robyn
 Cummins
 is the World Cerebral Palsy Manager. Robyn’s passion is the lives and needs of people with cerebral palsy. She works for Cerebral Palsy Alliance in Sydney Australia, managing this global project that now involves 62 countries. She is excited by the opportunity to create positive and long-lasting change through the collective efforts of a worldwide community of people who care about cerebral palsy.

Michelle Fischer is the host of  A View from my Window, a podcast produced by  The Arc of Indiana