WARNING!! Celiac Disease NOT to be taken lightly!!

Before being diagnosed with celiac disease, I didn't even know there was such a diagnosis.  Unknowingly, I delighted in eating whatever I wanted. Pizza with a thin crust topped with green olives, breadsticks with cheese, cinnamon rolls with delicious creamy luscious frosting...food galore!  If you're reading this right now, is your mouth watering? You're very welcome! :) I was in foodie heaven, not realizing that in the not too distant future, my body would reject the very foods I loved.  The culprit: GLUTEN. The protein in things like breads and doughnuts.. No, wait.. the protein in almost EVERYTHING I was eating was wreaking havoc on my insides.. manifesting it's wrath on the outside, as well. Acne, hair loss (which is an ongoing battle) hives and feeling sick all over!!                                                                                                            

                                                                                                                                        Once we had the answer to what was making me feel so horrible, the real work of fortifying my digestive system against the damage that had taken place, had to begin and has had to continue.  I cried the first time I couldn't have just a regular slice of pizza, or a bowl of regular pasta. I cried!  Looking back on it, it was quite hilarious that I cried... I mean, really!  What I learned is to be very informed and aware of how I felt when I was sick because of the gluten.. ( I wouldn't wish that on my worst enemy) and stick to a gluten free diet!  One of the people I have recently had the privilege of interviewing is Alice Bast, President and CEO of Beyond Celiac based out of Pennsylvania 

  Alice herself suffered debilitating effects from celiac disease and didn't know what it was.  Once she became well informed, she didn't want others to go through the struggles she went through.

I have only met Alice and her team virtually, but let me tell you, they are a powerhouse in Philadelphia at Beyond Celiac! They are concerned and understand how important diagnosis and treatment of celiac disease is, and how awareness helps you to alleviate symptoms and get you back on track to a healthy, happy YOU!

Listen into my interview with Alice Bast  here:  http://www.arcind.org/view-into-celiac-disease/
Here is a link to their fresh new updated website!  http://www.beyondceliac.org/
Michelle Fischer is host of A View from My Window, a podcast produced, by The Arc of Indiana

Organization Profile: IPAS

IPAS, or the Indiana Protection and Advocacy Services, was recently featured on "AView from My Window".  I love profiling "new" (to me) organizations who work hard to give people with disabilities a life that is full and meaningful.  IPAS simply wants everyone to be treated the same, which means having the same human, legal and civil rights as everyone else.

The team at IPAS, Executive Director Dawn Adams and Director of Communications Jessica Trimble, plus the dedicated interns on staff are very dedicated to their mission and responsibility of providing the needed support to the disability community in navigating the legal and human rights system, which can be very lengthy and confusing.  What's impressive about Jessica and Dawn is their motivation in helping the folks they serve.  They seek knowledge from other organizations like The Arc of Indiana and the imput from others, including myself, regarding what protection and advocacy mean to us.  The concept of advocacy wasn't even something I could have wrapped my head around, until I started my job at The Arc of Indiana, and saw how much it was promoted and encouraged.  The more confidence I 've gained in coping with my disability, the more appealing advocacy has become to me.  I found that I could implement advocacy in different ways and in different areas of my life.  Advocacy is a gift that is to be shared, so that not only you can live the life that you want, but more importantly so that others can live the life they want and deserve!  

If you or someone you know would benefit from the services IPAS offers,  feel free to contact Jessica Trimble at IPAS  phone: (317).719.3944
                            (317).722.5564 (fax)
                         Email: jtrimble@IPAS.IN.gov

Michelle Fischer is host of A View from My Window, a podcast produced, by The Arc of Indiana www.arcind.org/AViewfromMyWindow

Listen to Dawn and Jessica talk about what IPAS offers in our interview here:  http://www.arcind.org/a-view-into-ipas/

Being Thankful: It's all about perspective...an everyday effort.

I always love getting to spend time with my Grandma!  For as long as I can remember, she's been one of the biggest influences in my life.  My mom has, over the past couple of years, started to take on the role of caregiver, which involves taking care of everyday things for my grandma - making sure she has meals, new clothes when needed, doctors’ appointments, paying her bills, filling out paperwork, etc. - it’s a never ending list, actually.  Each new day brings the same routine and what has amazed me is my mom’s dedication to her mom.  She's told me countless times she doesn’t want my grandma to feel alone.  I see why she feels that way.  Her parents never left her alone or with nowhere to turn.  When my sister was growing up, she was with my grandparents whenever mom needed someone to watch her.  When I grew up, I was never always cared for, as well.  Both my grandma and grandpa made it part of their routine everyday, like clockwork, to be at my house to get me off the bus...always bursting with love and smiles to greet me.  My grandma would fix snacks as we talked about the school day.  I was always helped with my homework (translation: I am not and never was a math genius!)  No matter what it was, they were always there.  Holding me up, cheering me on and building me up.  Returning the favor is only the right thing to do. Being supportive a thousand times over.  For years, my grandma did well on her own and then we realized for her own safety and well-being she needed a little more assistance.  Transitioning there was rough, so the supportive reinforcements were built up.  Reassuring her that she would be in a safe place and able to do what she wanted so she could find more joy in being in a community that would welcome her with open arms and help her through the tough spots of moving into a new phase of life.  Every once in awhile, she would say she wants to come back to the home she lived in.  I started off by saying that I could really relate to her.  I haven’t done all I want to in my life either, but if we get too focused on what we don’t have, we'll miss out on the blessings we do have.  Mom and I both tell her how much we love her, and that moving her to where she lives now is because we want her to be safe, happy and healthy!  She just happens to be all those things, now that she has gotten settled in her new home!

My grandma continues to teach me that you may not have the most ideal situation, but you can be happy in adjusting to a new situation...and come out smiling on the other side!  That’s what my grandma does every day and I’m determined to do the same. Being thankful is an everyday thing. That way everyday can be sunny and bright!!  Make it part of your everyday routine!

Love you Grandma!! :)

Handicap This: Promoting Cerebral Palsy Awareness and giving you a glimpse into a real deal friendship!

Every interview I do has an impact on me, and when I interviewed Tim Wambach and Mike Berkson of the wildly successful stage show, Handicap This, it was no different. The impact has been a very positive and personal one.  Tim and Mike have a way of inviting you into their company and making you feel like you've known each other for years. They wanted to meet me and I reeaally wanted to meet them, so it was a very easy comfortable flow when we met and said hi and what made it even more unbelievable was that our interview was over the phone!  I really related to one of the things Mike said... he said that he didn't know if anyone outside his family would accept him for who he was.  Enter stage left, Tim, a 27 year old who became Mike's aide when he was 12.  Soon after, Tim began to realize that his job as Mike's aide was turning into a friendship!  This is a friendship that transcends any barriers!  It's inclusion at it's best! Mike and Tim are BEST friends and it doesn't take you long to recognize their unbreakable bond.  In fact, I was honored that I got to hear it with my own ears! Handicap This helps you understand that there is more to a person than just what's on the outside, it's what's on the inside that counts.  Tim decided that he was going to open his mind and his heart and get to know who Mike really was, which meant Tim would see Mike go through rough, painful times and happy, incredible times... But, no matter what, Tim showed that he would be with Mike through it all... He wasn't going anywhere!  He values Mike's friendship and Mike values his!  Now, and since 2010, you can see their journey play out on stage, where you will laugh, cry and be INSPIRED!

This interview will be one of the ones that will stay with me through my career as an anchor!  Improvise. Adapt. Overcome.

Tim- 
Thank you for opening your heart and your mind all those years ago and having a passion for helping those with disabilities and special needs and continuing to make minds "handicap accessible"!  You truly are a one-of-a-kind person!  Thank you for being you!

Mike-
Thank you for showing all of us what having a physical challenge can look like. We don't have to let limitations define the possiblities of what we CAN DO!  Because you ponder the infinite possibilities, all of us who have the privilege of meeting you, also ponder our own possibilties!  Thank you for sharing your positive journey that is the essence of you!

Listen to Mike and Tim on my podcast! We had so much fun! http://www.arcind.org/a-view-into-handicap-this/
Want a sneek peek of the show? Watch Mike and Tim's TEDx Iowa speech! https://www.youtube.com/watch?v=nfVCgRVMBRc
Michelle Fischer is host of  A View from My Window a podcast produced, by The Arc of Indiana