Thursday, August 11, 2016

Behind the Mic Book Review: Carly's Voice- Breaking through Autism

I got "introduced" to Carly Fleischmann when I saw a video of her interview with Channing Tatum.  An instant smile came across my face.. Star struck by Channing, you say?  Well, Carly was, so that means I can be a little star struck too, doesn't it?  (Anyway, that's a totally different blog post within itself!)  I was amazed at the poised, bright, witty girl that just grabbed your attention through the screen.  Poised and in charge of the interview, yet allowing you to see that she was totally having a ''fan girl'' moment with Channing! My only indication that she might be a person with autism was her voice output device.  One thing is for certain though, when I watched that video, the consistent thought that ran through my mind was: "Oh, she is doing fantastic!! Yay!! Good for her!"  I had to pause and ask the question,"What did it take for Carly to get where she is today?"

Enter stage left, the book, Carly's Voice Breaking through Autism. Carly's dad, Arthur, gives you insight into the uncertainties of what the diagnosis of autism would mean for their precious girl while raising ''typical'' siblings, and at the same time coping with his wife's cancer diagnosis.  Quite frankly, special needs parents are superheroes, period. That's obvious from his side of the story. The last chapter is Carly's side of the story. You're the coolest Carly!  I got drawn into Carly's chapter because of her quick wit and hilarious slant on life.  By the way, how did you know, that I chose to do a combination of options 1 and 3 to get to the most awesome chapter?  It's that photographic memory of yours, isn't it?  You really rock it, girl!  In the same breath, tears flowed when I read how she remembers the day she knew she was different, yet yearning for the connection and normalcy of being just like her siblings.  One of the things she reminds you of in this chapter is, it's not that Carly never had a voice, she just needed a way to get it out.  And get it out she does!  She and her therapists, Barb and Howie worked tirelessly to find a way to let her voice be heard...Welcome to the wonderful world of typing, which allowed Carly's family to meet her and Carly to meet herself and discover her mission to show others with autism that they have an inner voice!  Once she knew herself and realized that she had valuable and relatable things to say.....her inner voice burst out and she blossomed!  In Carly's case, a quote from Hellen Keller says it best... "When one door of happiness closes, another opens, but often we look so long at the closed door that we do not see the one that has been opened for us". The Fleischmann family has certainly had their fair share of sadness, but in the end, because of sharing their story, their door of happiness opened, when they saw that, they kicked it open and used it to help others in a most eye opening, inspiring way!  Thank you all for sharing your story!

Michelle Fischer is host of A View from My Window, a podcast produced, by The Arc of Indiana

Thursday, July 28, 2016

Behind the Mic Book Review : Bloom: finding beauty in the unexpected by Kelle Hampton

Bloom: finding beauty in the unexpected, by Kelle Hampton is a book that is candid, honest, raw and yet, a refreshing look into the diagnosis of a life-changing disability.  Kelle's second child, Nella, was born with Down syndrome. Kelle's heart sank the moment she saw her baby girl.  Altho she felt like she was alone, she never really was.  Kelle's husband, Brett, along with countless girlfriends, held Kelle up when everything seemed to be shattering around her.  They cheered her on as she bravely faced the yet unknown challenges that she would have to come up to the plate and conquer.  While she didn't hold back the ravages of her emotions and the pain that shook her insides to the core, you can clearly see, early on, the kind of person Kelle really is... She was able to develop deep relationships that sustained her and helped her to heal, while she changed her perspective.  She began to realize that the pain of her little girl's diagnosis seemed to blur her vision to the fact that Nella was a healthy, beautiful baby!  When the challenges presented themselves, she wouldn't be alone in surmounting them.  Dr. Foley was on the front line of support and would lovingly remind her that little Nella was already making advancement.  She passed her hearing test, her jaudice numbers were disappearing, and her heart test was fine, which not always, unfortunately, can be said of those with Down syndrome.  As you go along on the journey with Kelle, you begin to see that, despite the earth shattering change that occurred, she knew she couldn't stay down in the mire of negativity, or under the control of her "sadness demons" as she called them.  She had to begin to "flip the switch in her head" as her sister Carin called it.  She also asked her to ''discard the old glasses and put on the new ones, because, life is how you look at it."  There are countless illustrative word pictures in this book that I am going to keep in my "positive thinking memory recall list" (Yes, I made  that up....aren't you amazed?? :) )  In writing this book, Kelle, has given such a gift to all who live with a disability and their parents and caregivers.  Kelle was inspired by a statement she read while pregnant with Nella... It said:"Living a life of comfort, does nothing to help us grow, and hard times shape us into interesting, developed characters." Getting out of our comfort zone, helps us to "Bloom" finding beauty in the unexpected and "waking up to live and love fully!"

Kelle, Brett, Austyn, Brandyn, Lainey and Nella-

Thank you from the bottom of my heart for sharing your journey in this book! You all have shown that to Bloom means to embrace and accept Nella for who she is and help others to do that, too. Awareness of that kind has a ripple effect, and this book and your sharing it, has done that so beautifully! Many hugs to all of you as your story continues to Bloom!  

Want to read Bloom for yourself?? Order it here: www.amazon.com/Bloom-Finding-Beauty-Unexpected-Memoir/dp/0062045032?ie=UTF8&hvadid=3488214665&hvbmt=be&hvdev=c&hvqmt=e&ref=pd_sl_4xk7zhgsyl_e&tag=mh0b-20

Michelle Fischer is host of  A View from My Window, a podcast produced by The Arc of Indiana

Tuesday, June 28, 2016

Behind the Mic Book Review: Riding the Bus with my sister

I got this book several years ago when I started hosting my podcast.  I remember being so excited about reading it, but then after crying in the first couple of chapters, (not the composed teary eyed cry, no, it's the tears streaming down, red face, UGLY cry!)...I decided that I just wasn't emotionally ready for the book.  So, back on the shelf it went for a long while.  Fast forward to the present... I'm writing this review, so you can guess what I finally did.  This book is so relatable on so many levels, for many people in varied aspects of life.  Today's fast paced life is so hurried and distracted that to slow down and take just a small breath, takes quite a bit of effort.  I related to both perspectives in this book.  I related to Rachel because I tend to want to do things or think things faster than my body can go.  If I allow myself to slow down and grasp the reality of my physical situation and it's impact, the reality is sometimes a hard pill to swallow.  When I think about it, though, stopping to look around allows me to take a better look outside my window.  What sorts of things could I get a better understanding of?  Especially from a person who possesses abilities that are different from mine?  I think the greatest lesson this book presents is the ability to push your comfort zone, ask questions, and take a good look inside yourself.  If you see something you'd like to change, like an attitude or a misunderstood perception of someone or something, you have an opportunity to do just that.  You'll find that when you make that change, you are the one who benefits the most!  Changing yourself is never a bad thing, it always produces the best outcome for you in life.  Rachel found that "Riding the Bus" with her sister, Beth, opened up new horizons.  She may have known they were there, but it just took time to bring them into focus.  When that focus was achieved, her love, respect and relationship was made new and stronger with her sister... Now that's pretty sweet for riding the bus!  Thank you Rachel for sharing your beautiful bond with your sister!  And letting readers like me, take the ride too!


Michelle Fischer is host of  A View from my Window, a podcast produced, by The Arc of Indiana
With my sister Christine  :)

Tuesday, April 12, 2016

Disability Awareness Month 2016: Where am I now?

March is Disability Awareness Month each year.  I have to admit, I actually kinda geek out during this month! Yes, we do get covered on the news a bit more and I get to see the cool things that others do to celebrate the month.  I especially love the the humorous and empowering t-shirts! Most importantly though, I reflect on how far I've come in my life.  From the day of my birth and my parents wondering if I would survive the first couple days of life, to being a journalist in the field of my choice! Of course, there was a lot of hard work in between.  I've come to realize that I'm the same as everyone else, but drastically different. Goals and aspirations are slow to come, at times.  My brain, I say, is able-bodied, but my body is slow to follow!  Giving up, though, would never do anything good for me so I refuse to give any time to the idea.  Instead, I look to build up! The key to helping myself is helping others. Whether it's a warm hello with a smile, spending time with friends and family, shopping for gifts for friends, sending cards, writing, working with my team on my podcast and interviewing incredible folks...all this builds me up and gives me the strength to continue to shine and be the happiest I can be everyday! So, this year for Disability Awareness Month, my advice to you is something that Scott Chesney said, an international speaker from Verona, NJ, recently interviewed on my podcast: "Don't let something life changing happen to you before you make a change". There are always going to be challenges, emotional ups and downs, bumps in the road, things that can cloud your vision, but always ask yourself: "Would you want it to be worse?" It could be worse in an instant. You have the power to choose your attitude toward whatever situation you find yourself in. Happiness is where it's at, people! :)  You are more than your disability tells you you are!  I want you to be able to look back on 2016 Disability Awareness Month and be able to say: Where am I now? I'm farther than I ever thought possible! What a GREAT choice....Right? :)